Northern California Chapter of the NMF Phone: 415-665-7244 - Vicky Prager Email: Vicky Prager, vprager@sfo.com

Chapter Contact Information:   Northern California Chapter of the NMF   c/o Susan Meier, President   2207 Invar Court   Rocklin, CA 95765

Effectively Immediately -

The Northern California Chapter of the National Marfan Foundation’s website will no longer be operating as a separate site. For more information, please contact the National Marfan Foundation’s main website - www.marfan.org. You will now be able to access Chapter information, as well as Local Network information through the “Local Contacts.” If you have problems with connecting to the NMF site, please contact the Northern California Chapter’s representative, Vicky Prager at 415-665-7244 or by email at vprager@sfo.com. Thank you!

Northern California Rocks!

An introduction to the Northern California Chapter of the NMF, the history and the members that make it what it is.

CURRENT NEWS AND EVENTS:

Local Networks Marin Sacramento Area

Past Events Sacramento Local Network Meeting - 9/6/2008 First Annual Regional Marfan Educational Symposium - 5/3/2008 Ninth Annual Friends and Family Charity Dance for NMF - 3/1/2008 Proposed Agenda for the next Sacramento Local Meeting on 02/02/08 NOR CAL NMF STEERING COMMITTEE MEETING 09/29/07 The Seventh Annual Northern California Chapter of the NMF BBQ - 9/29/2007 The 2007 NMF Conference at Stanford University, July 12-15 Eighth Annual Friends and Family Charity Dance, 2/24/2007 Music For Marfan - A Benefit Concert, 12/3/2006 Leather and Lace Fundraiser, 10/21/06 The Sixth Annual NCCNMF BBQ & Silent Auction, 10/7/06 Steering Committe Meeting, 4/2/06 RENT Premier in San Francisco, 11/21/05 Northern California NMF Volunteer Meeting at Stanford for the National Conference Past NCCNMF BBQs

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How to Become a Chapter Member:

Please contact the Chapter by phone, email, or US Mail, and advise us of you interest in becoming a member of the Northern California Chapter. We will include you in the mailings of upcoming chapter events, meetings, news, etc. We also encourage members of the Chapter to become member of the National Marfan Foundation, by visiting their website at www.marfan.org.

What is Marfan Syndrome?

The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.

The Marfan syndrome affects men, women and children, and has been found among people of all races and ethnic backgrounds. It is estimated that at least 1 in 5,000 people in the United States have the disorder. For more detailed information, go to the National Marfan Foundation’s (NMF) website at www.marfan.org or read an excerpt from the NMF booklet The Marfan Syndrome.

       "The NMF is registered as a not-for-profit corporation under the laws of the State of Maryland, and is exempt from United States federal income taxes under section 501(c)(3) of the Internal Revenue Code."