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Northern California Chapter of the NMF Phone: 415-665-7244 - Vicky Prager Email:
Vicky Prager, vprager@sfo.com
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Chapter Contact
Information: Northern California Chapter of the NMF c/o Susan Meier, President 2207 Invar Court Rocklin, CA 95765 |
Effectively Immediately -
The Northern California Chapter of the National Marfan Foundation’s website
will no longer be operating as a separate site. For more information, please
contact the National Marfan Foundation’s main website -
www.marfan.org. You
will now be able to access Chapter information, as well as Local Network
information through the “Local Contacts.” If you have problems with
connecting to the NMF site, please contact the Northern California Chapter’s
representative, Vicky Prager at 415-665-7244 or by email at
vprager@sfo.com. Thank you!
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How to Become a Chapter Member:
Please contact the Chapter by phone, email, or US Mail, and advise us of you interest in becoming a member of the Northern California Chapter. We will include you in the mailings of upcoming chapter events, meetings, news, etc. We also encourage members of the Chapter to become member of the National Marfan Foundation, by visiting their website at www.marfan.org.
What is Marfan Syndrome?
The Marfan syndrome is a heritable condition that
affects the connective tissue. The primary purpose of connective tissue is to
hold the body together and provide a framework for growth and development. In
the Marfan syndrome, the connective tissue is defective and does not act as it
should. Because connective tissue is found throughout the body, the Marfan
syndrome can affect many body systems, including the skeleton, eyes, heart and
blood vessels, nervous system, skin and lungs.
The Marfan syndrome affects men, women and children, and has been found among
people of all races and ethnic backgrounds. It is estimated that at least 1 in
5,000 people in the United States have the disorder. For more detailed
information, go to the National Marfan Foundation’s (NMF) website at
www.marfan.org
or read an excerpt from the NMF booklet
The Marfan Syndrome.
"The NMF is registered as a not-for-profit corporation under the laws of the State of Maryland, and is exempt from United States federal income taxes under section 501(c)(3) of the Internal Revenue Code."