Northern California Chapter of the NMF Phone: 415-665-7244 - Vicky Prager Email: Vicky Prager, vprager@california.com

Chapter Contact Information:   Northern California Chapter of the NMF   c/o Susan Meier, President   2207 Invar Court   Rocklin, CA 95765

Northern California Rocks!

An introduction to the Northern California Chapter of the NMF, the history and the members that make it what it is.

CURRENT NEWS AND EVENTS: Fall Family BBQ and Fundraiser -  September 27th, 2008, Castro Valley, California Stay tuned for more information

Local Networks Marin Sacramento Area

Past Events First Annual Regional Marfan Educational Symposium - 5/3/2008 Ninth Annual Friends and Family Charity Dance for NMF - 3/1/2008 NOR CAL NMF STEERING COMMITTEE MEETING 09/29/07 The Seventh Annual Northern California Chapter of the NMF BBQ - 9/29/2007 The 2007 NMF Conference at Stanford University, July 12-15 Eighth Annual Friends and Family Charity Dance, 2/24/2007 Music For Marfan - A Benefit Concert, 12/3/2006 Leather and Lace Fundraiser, 10/21/06 The Sixth Annual NCCNMF BBQ & Silent Auction, 10/7/06 Steering Committe Meeting, 4/2/06 RENT Premier in San Francisco, 11/21/05 Northern California NMF Volunteer Meeting at Stanford for the National Conference Past NCCNMF BBQs

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How to Become a Chapter Member:

Please contact the Chapter by phone, email, or US Mail, and advise us of you interest in becoming a member of the Northern California Chapter. We will include you in the mailings of upcoming chapter events, meetings, news, etc. We also encourage members of the Chapter to become member of the National Marfan Foundation, by visiting their website at www.marfan.org.

What is Marfan Syndrome?

The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.

The Marfan syndrome affects men, women and children, and has been found among people of all races and ethnic backgrounds. It is estimated that at least 1 in 5,000 people in the United States have the disorder. For more detailed information, go to the National Marfan Foundation’s (NMF) website at www.marfan.org or read an excerpt from the NMF booklet The Marfan Syndrome.

       "The NMF is registered as a not-for-profit corporation under the laws of the State of Maryland, and is exempt from United States federal income taxes under section 501(c)(3) of the Internal Revenue Code."

   NCCNMF